I can remember being a senior in high school and having arguments with my parents about applying for “blind scholarships.” By that I mean, scholarships awarded to blind students pursuing college degrees, or students with physical disabilities in general. My parents were pro, I said no. I was determined not to get money just because I was blind. I was seventeen and silly and really stubborn and I was having none of it. I didn’t want my claim to fame to be that I was the best, smartest blind person. And, I suspect that I also feared NOT being the best, smartest blind person. I feared losing. I feared rejection.

What a difference 13 years, many of them unemployed, and a sizable cache of student loan debt can make. Forget buying a house, I now have a student loan mortgage. Maybe I should have tried harder to be the specialest snowflake blind person and gone for all those scholarships. “Maybe I should have”, I suppose, is a staple of getting older. In any case, there are far fewer scholarship opportunities for blind MFA grad students than there were for undergrads. “I should have” known better.

When I started using public transit after moving to the Twin Cities, I was determined to pay the full fare. It was $1.50 then, and the disability fare was 50 cents. There was no reason, I thought, that I couldn’t pay as much as everyone else.

“It’s only 50 cents,” bus drivers would tell me after I plunked in all my change. “You get reduced fare.”

I remember feeling annoyed and insulted by their comments. They didn’t know anything about me. How could they be so presumptuous and try to tell me what I “should” be paying?

Now, I pay the disability fare. If I made a ton of money, I tell myself, I would pay the full price. I would support public transportation. But, for now, I’m glad I have the option to spend less on the bus. It’s helpful.

I have EBT, aka “food stamps.” Every time I have to go reapply or update things in person, I cry. It’s embarrassing, and I try not to do it, because I know better logically. I know I’m not “just sitting around taking from everyone else.” I know I’m not lazy, or at least, that I’m not lazy about the big things. (I do put off doing laundry longer than I should is all I’m saying.) My economic situation is not because I haven’t just “pulled myself up by my bootstraps”, “buckled down”, or “worked hard enough.” It’s a systemic problem. But I still feel ashamed because of what society says about people like me.

I remember the first time I applied for EBT, my dad mentioned there was a sign in the DHS office that said something like, “No angry or violent outbursts.” I thought, at the time, that that sign was strange and kind of funny.

To be honest, I understand it now. I’ve seen people on the bus, on the streets, at the Department of Services for the Blind, just lose it because scarcity, disempowerment, poverty … all of it is freaking hard. I’m not supposed to lose it, so I don’t, but sometimes I envy them. I’ve seen older people, completely beaten down by our systems, who are bitter and unable to see what’s beautiful any more. I don’t want to get that disillusioned.

Pride is something I have less of now. But I don’t want to lose my compassion. I want to be kind to people, especially the people who understand the brokenness of our systems and think about what it would take to change them. I’m putting this here, so I don’t forget about compassion and kindness.

The Moon and Restlessness

I had a rare moment of “sight want” yesterday when I thought about the super blood moon eclipse thingy. I wanted to see it. I thought, “I wish I could see that!” I had a vision of going with a bunch of people to a lake or the Sound, spreading out a blanket, turning off our phones, lying on our backs, drinking mead, watching the sky. Maybe singing. Come on, you’d sing to the moon with me, wouldn’t you?

I’ve had a long love affair with the moon. I’m a garden variety Pagan type, so I’ve become fascinated with moon cycles and moon culture. I love the names for the moons of the year, each one representing a different month and season. Strawberry Moon in June, my birth month. February’s Hunger Moon, when crops are scarce and green scarcer. In December, the winter solstice brings Long Night’s Moon. Egg Moon in April, for new life.

The Emily Dickinson poem I remember most: “The moon was but a chin of gold, a night or two ago; and now she turns her perfect face upon the world below.” Because of this poem, I always picture the moon as a face, liquid lunar pools for eyes, bright beams like a smile, sometimes covered over in angry clouds.

I think about the moon a lot this time of year, too, with the changing of summer to fall. It’s the time of year I feel itchy and restless, even more than usual. Sometimes I like to blame it on the Hunter’s Moon of October, also called Blood Moon, also called Dying Moon. Life feels fleeting this time of year, and in turn, extremely precious. I want to travel, move to another city, do something big to prove that I’m living while I can. I find myself googling cities all over the world: New York, Sofia, Zanzibar, Capetown; looking at their weather patterns, their city scapes, thinking of what I would hear and how I would feel on those streets with my feet tired but rejuvenated. I pull up old language-learning files from college: German grammar, Spanish poetry, my clumsy attempts to emulate Chinese phonetics. I look at job boards in other states, wondering if someone there would hire me. I don’t apply. I reject myself before they can.

I used to wonder if I would always be restless and wish not to be, wish to be happy and grounded where I am. Now, I’m coming to accept my restlessness. It pushes me when nothing or noone else will. I will probably never satisfy it. There is too much out there to experience and understand. It will keep waxing and waning, like the moon, but like the moon, it will always be there.

I hope you saw the eclipse. And if you sang a little bit, even just in your head, you and I are kindred spirits.

A few months ago, I participated in an accessible technology study where, for two hours in a tiny, windowless back office, I schlepped my fingers around a touch screen trying to set up an email address and read an ebook. Even though there was a screenreader, it was still difficult for me. I re-typed and deleted, and everything I touched seemed to whisk me away to somewhere else, never where I wanted to be. It seemed like the technological universe was trying to tell me something. Get with the touch screen program, Lauren. It’s not 1965 any more.

When I bought my Samsung, about two and a half years ago, it was the last phone in the store with a physical keyboard. Everything else was touch screen operated. That made the choice of what phone to get an easy one, but did not bode well for the future I had hoped for, where there would always be a physical QWERTY keyboard with physical buttons.

The accessibility study was the kick I needed to get myself an iPhone. Since I was due for a “free” upgrade anyway, and since I’m unemployed so ostensibly have nothing else to do, (except grad school), I took myself on an Iphone acquiring date.

The guy who helped me tried, right off the bat, to sell me a case. I was fairly amenable to this, because I have a history of, somehow, cracking my Ipod screens irreparably. Still, I let him give me the pitch anyway.

“Do you drop your phone a lot?”

“Not really.”

“Have you ever gotten it wet?”

“Hmm. No, not noticeably.”

“Well, if you bought this case, you could drop it in the sink and it would be fine. Heck, you could throw it across the street if you wanted to and it wouldn’t break.”

I wondered why anyone would be so ridiculous as to throw their phone across the street, but still, I got the case anyway.

And, a few days later, I realized why some perfectly un-ridiculous person might, in fact, throw this phone across the street.

Before I figured out how to “fix the orientation” of the phone, the keyboard wobbled all over the place. I’d be merrily typing along, and suddenly the phone would make a little “whoop” noise and the keyboard would slither to the other side of the screen. If I physically turned the screen to catch up with the keyboard, it would slither somewhere else. I finally started Googling and learned about the two “modes” of the phone, landscape and portrait, which, as far as I can tell, have to do with how the icons on the screen arrange themselves to fit the space allotted on the screen. (Or something. … Oh, hell, I don’t really know what it means.)

I finally figured out how to lock the phone in portrait mode so that there is no more keyboard slithering. But it still takes me several minutes to write a short text message. To text, I slide my finger around the keyboard and listen for the letter I want, then tap it. Sometimes, I’ve heard so many letters that I forget where I am in the word I’m typing. Or, I forget what the word I’m typing is. Or the whole message, I have no idea what I’m doing, who the message is for, what day it is, what city I’m in. The only logical thing to do, at this point, would be to throw the phone across the street. If I could find the street.

It’ll get better. Right? In the meantime, if you feel like the texts I’m sending you are uncharacteristically grumpy, (even for me), it’s not you, it’s the phone.

I’m Only Gonna Ask This Once…

If you’re a fan of This American Life, you know this scenario well. Pre-show, Ira Glass lowers his voice and tells you about all the content they’ve been bringing you recently. How much it costs to make shows about who-done-it murders and segregated schools. And, really, if you wouldn’t mind donating to This American Life, he promises he’ll only ask once. This is the last time you’ll hear from him. Promise. He tells you this softly, intimately. You want to believe, yes, yes you do, but you know in a few more months, it’ll be the same thing all over again. “I’m only going to ask once … until the next time I only ask once.”

I love This American Life, and I actually don’t get annoyed by the donation requests. I’ve developed a keen appreciation for the work that must go into those podcasts and all that reporting and storytelling. I’ve also seen, firsthand through my writing program, the hard work and low pay that goes into writing, a profession that people do because they love it and it feeds them in ways that aren’t financial.

But a varied diet, creative, financial and otherwise, is also a good thing. I think with the explosion of podcasts and blogs, people are slowly starting to take content creation seriously, and realize that it is, more often than not, a free labor of love, but that just because it’s free doesn’t mean it doesn’t take time, care, patience, and persistence.

All this to say, readers of BlindinFlight, I’m only going to ask you once … until I ask you again …

I’ve set up a Paypal button on the front page of this site for giving one-time donations, if you are compelled to do so. My intention with this blog was NEVER a monetary one, and it never will be. I will write it regardless, because it feeds me creatively. But, if you’ve felt my words to be worthwhile, if there’s something in these snarky, silly posts that has spoken to you, the Paypal button is there if you want it. No pressure, no questions asked. That, at least, I can promise.

Generating the HTML code for adding the button took a few hours more than it should have, so if you’d at least LOOK at the button and admire it for a minute, that would also mean a lot to me. My screenreader is not a fan of HTML.

More soon, and thank you for reading and for your consideration. Most importantly, thank you for admiring my Paypal button. I am forever grateful.

Vicarious Transport

Only in the last few years have I had the (super awesome and exciting!) privilege of getting to read some books on the day they are released to print-reading folks. Notice I say “some” and not “all.” I still dream of a day when everyone will have equal access to print media at the same time, with no corners cut and for no extra cost.

The prime reason that I can now enjoy some books on Release Day is Bookshare. When I joined in 2003, they had a much smaller catalogue and books had to be scanned entirely by hand. Now, thanks to ebook culture, I think they’re able to produce Braille digital copies much faster. You can now read most NY Times bestsellers at the same time they ARE actually bestsellers, whereas just a few years ago you’d be waiting for someone, (most likely a volunteer), to scan printed text.

All this to say, that I am a happy, happy reader, because Bookshare had a copy of Heidi Swanson’s new book, Near and Far, for download on the day of its release. I had been crossing my fingers, but wasn’t hopeful. Heidi’s cooking, though popular in the “foodie” world, might be a little eccentric for justifying its Bookshare release on the same day as its print release. (The more mainstream the book, the better the odds are.) I love Heidi and have loved her for years because of her blog and because I’m just a big giant cookbook nerd. I think food tells stories, and the food that writers choose to include in their cookbooks is important because it shows us an individual life and aesthetic. And food is important not just for eating but for culture and seasons and learning and comfort. I’m fascinated by what other people like to eat. I’m one of those people who, if it were socially acceptable, would look in all the fridges of my friends’ houses, just to see what kind of pickles were there. (If I’ve fed your pets or watered your plants while you were out of town, I may or may not have done this.)

It helps, too, that Heidi has a lovely way with words. She’s a photographer, too, so her blog holds many photos, which she also describes in words. I love and appreciate that. Her aesthetic is very Northern California, very full of avocados and oranges and microgreens. I learned how to cook Brussels sprouts in a way that people actually like from her. I learned about spelt flour and cilantro-pumpkin seed pesto and how San Francisco feels on the shortest day of the year. (There’s Fog and rain, and all you want to do is put on a sweater and stand over the steam drifting from a pot of pozole.)

Near and Far has a travel theme. Heidi begins in Northern California and then cooks her way through Japan, Morocco, France, Italy, and India. Plus, some recipes for “en route.”

Heidi is one of those people who seems like everything is perfect, like she’s always so put together and has it all. Part of me kinda hates her. Food writer, indie shop curator, owner of a beautiful house in San Francisco with a chandelier in the dining room, has the means to travel and eat in places we view as “exotic.” Lucky! What brings me back to her is the humility I feel in her prose, her off-beat recipes, and the fact that I’m sure life sucks for her sometimes too.

Even though the book’s been out since Tuesday, and I got it on the FIRST DAY, it’s been a crazy reading week for me for school, so I’ve barely started tucking into it. Here’s the very first words of her intro, talking about the produce of CALIFORNIA: “JANUARY 25: Long, thin whips of deep green puntarelle, a swarm of tiny yellow key limes, dried persimmons with downy skins, red-skinned hand-cracked walnuts, chickpea flour, sprouted mung beans, a friendly giant pomelo with twin glossy leaves attached, stubby bouquets of nameko mushrooms, little yellow pom-poms from snipped branches of acacia tree.” I’ve already felt transported, and started thinking about the food I’ve been lucky to eat in places I’m lucky to have been: hot chestnuts in Spain, warm-spiced couscous in Morocco, tiny corn-speckled arepas in Ecuador, pierogis with cranberry sauce and kasha in Poland. Here’s to many more delicious traveler meals, and some serious snuggly reading time over the weekend.

Labor Day is over, which probably means summer is, too. The last week and a half have been cloudy and cool here. I’ve been closing the windows at night. Things are changing.

I don’t want to say that. I always have a slight temper tantrum at the end of summer, kicking and screaming my way into fall just until I breathe the first lungful of burnt leaf crockpot cooking incense fresh breeze. Then the fight goes out of me.

This summer was my first in Washington and it felt sun-dappled and too short. This summer was walks by the canal and Green Lake, huge hashbrowned omelets at Beth’s afterwards. This summer held weeks of cherries, all sweet, and one generous quart of sour pie cherries, which I should have horded more carefully. Maybe, as the name implies, you’re supposed to put them in a pie, but mine never made it that far. I ate them by the handful. Ditto peaches, which, until the last month, never made it further than the kitchen sink where I stood slurping, with juice running down my chin. Then, two weeks ago, I made peach buttermilk ice cream. With cinnamon. And pecans. And bourbon.

This summer, I figured out how to deal with fava beans, because they grow here. Ditto nettles, morel mushrooms, fiddleheads, huckleberries, and dragon’s tongue beans. It’s likely that many of these things grow in Minnesota too, but less prominently. Everyone in the Pacific Northwest seems to be an artisan of some food creation, so the more quirky the produce, the better.

This summer was drinking wine on Vashon Island, kicking around Port Townsend with no agenda whatsoever. It was writing on Whidbey and starting my second semester of school. I enjoyed feeling like I knew what I was doing this second time around, maybe, possibly, like a real grad student.

This summer was showing my friends and family around Seattle, walking the hills of my neighborhood, trying to get a job. Not getting one, and having multiple opportunities flounder. (I may write these up in future posts, if I can muster the energy.)

Now that it is almost over, what did this summer feel like to you?

Someone on the bus the other day asked me if I had been “born that way.” I assumed she meant blind. I assumed this because she’d just spent the better part of the previous 5 minutes telling Kiva what a good dog she is and how good she is for “seeing for your mommy.” I ignored all this, because I haven’t figured out a good way to end this line of monologue yet. So, I just pretend it doesn’t exist, like a good Midwesterner.

After she said, “Were you born that way?” I figured attention had shifted from dog to human. Benefit of the doubt, I somehow figured she wasn’t actually expecting the dog to answer.

I very politely told her, “I’d prefer not to answer that question.” This is a new thing I’ve just started doing. I used to feel compelled to answer all the questions lobbed at me on a daily basis by semi-bored bus people: “How much can you see?”, “How did you go blind?”, “How do you pick out your clothes?” I thought it was my “job” to “educate.” Whether it is or isn’t, everyone with a job has the right to time off. So sometimes, especially when I’m on a thickly crowded bus, sweating, trying to keep myself contained and compact, I take my vacation.

She didn’t get that memo, because she spent the next several minutes until I reached my stop, complaining to whomever would listen, about how if “people” expect respect, and expect opportunity, then they should have enough decency to answer a perfectly innocent question. After all, how is she supposed to know? She doesn’t know any blind people. She’s just trying to show interest, to be educated. How can she try to understand when people “refuse” to answer her perfectly logical questions?

Yup. I’ve heard this before too. I’ve probably been guilty of at least having some of the same thoughts, about people whose experiences I don’t understand and am ignorant of. Of course, I too want to learn and to hear perspectives different from mine.

I also totally get that, for instance, “my trans friend” is not under any obligation to answer all “my trans questions.” “My Latino friend” is not obligated to answer everything I want to know about being Latino. “My hard of hearing friend” owes me no explanation, ever, about what it’s like to be him, if he doesn’t want to offer one. Sure, I hope he will, but I’m not his victim if he declines. I don’t get to feel cozy with my ignorance, to sit back and say, “Oh well, I tried, guess I get a free pass now.”

There are other ways to learn. There are countless things to read, free, on the Internet. There are other people to talk to, if someone isn’t up for it when you’re bored and it’s convenient.

I’ve often thought that in recent years, I’ve noticed increasing awareness and embracing of differences. Things are, obviously, far from ideal, but I’d like to think, however tentatively, that they’re improving. No doubt social media has a lot to do with this. It’s now easier than ever to have a voice online, to speak of diverse experiences for those who want to listen. And, we’d like to think we’re good listeners, enlightened citizens. But our ears should also be attuned and accepting of a “No”, a “I’m not comfortable discussing that with you”, a “let’s talk later when I have better focus.” Just because you ask once and perceive you’ve been denied, you don’t get off the hook for not asking again.

Memory through Music

The last few days, I’ve been listening to Hindemith’s Symphonic Metamorphosis. Over and over, ad nauseum. I can’t get enough. Insert your cliche of excess here.

I played the four movements of this piece as part of a concert band in college, and I don’t remember actually enjoying it then. In fact, the words, “Let’s take out the Hindemith” often filled me with dread and trepidation. The piece is wonky. There are a lot of trills, weird key changes, stutters, notes packed in tight and sore-thumb noticeable if you screw up. Which I did, regularly. It is by turns joyous, eerie, triumphant, and wary. The “Andantino” has a snarling, barely contained tiger of a flute solo. It is achingly beautiful and wickedly hard, but you have to make it look effortless, which our very capable first chair flautist did enviably. I was glad to not be her. Plus, Hindemith must have had something against flute players, because just when you’re silently screaming, “Brava!” when the flute hits its final, shimmering note, the flautist must repeat almost the whole thing again several bars later. Evil.

Even though playing The Metamorphosis was challenging and some days made me want to die, as I’d sit for hours hunched over my tape player in a practice room, memorizing all 600 thousand million notes of the thing, when it finally came together, it was pretty great. I had not listened to the recording for several years since, maybe a decade. When I first heard it at the beginning of my binge, all I could concentrate on was the flute part. It was like no time had passed. I could close my eyes and remember every one of those 600 thousand million notes, beating inside me like they live there now. I remembered playing them in rehearsal, how singular the experience was, how it forced my brain to stop thinking about anything else except this one vital, exquisite thing in front of me. If you’re as much of an over-thinker as I am, you know how merciful those moments are. Even when I wasn’t playing, I was counting rests, listening for my lead-in cues: brass, clarinet, me, and we’re off again.

I’ve played in a few ensembles since college, and I’ve noticed that my memory is not as good now. Or, maybe my adult attention span is lacking, I’m worried about too many things, about feeding myself, trying to have goals, getting through. Now, when I memorize music, I can pull it off for a performance, but I guarantee you I can’t remember note for note for too long after that.

Memorizing and playing instrumental music is something I’m so grateful to know how to do, and to know that I can do throughout my life. People seem surprised when I tell them how different it is from writing. “But it’s still that creative, artsy thing,” they say, “it still uses the same part of your brain.”

I am in no way a brain expert, but for me, it feels quite different. Yes, there is some leeway in interpreting already-composed music, especially in jazz and baroque styles, where improv and embellishment are what make the pieces sparkle. But there is also an exactness to it; here are these notes that I must play in a particular way: sharply, softly, staccato, smooth. Here is what everyone else in the ensemble is going to play. Here is how it all fits together. And when it fits together, you don’t think, you don’t edit, revise, try different words, take those words out, try other ones. You just play all the damn notes, and you breathe when you can, and feel your face flush hot when you can’t, and listen to your heartbeat and squeeze your eyes shut and go for it, every time.

I’m a passable cook, some of the time. What’s “exciting” about my particular combination of following a recipe up until the need for rebellion overtakes me and I fling following orders into the figurative fire is that, just like Forrest’s box of chocolates, you never know what you’re gonna get. Sometimes I turn out a gorgeous coffeecake studded with puddles of fresh sour cherries, or a perfectly spiced curry in silky coconut broth, and then I make the exact same dishes, (sort of), the next week or month or year and they’re disastrous. Cherries oozing all over the oven and a cake that’s rubbery and deflated. A curry so scorchingly spicy and otherwise devoid of flavor that everyone’s sinuses explode within 50 miles of my kitchen.

Up until recently, it was in this same vain that I’d always made ice cream. Sometime in college, I think after returning from an Ecuador winter to a sticky Midwest heat in late July, I bought an ice cream maker. It was obnoxious. There was a giant bucket, which you placed the canister in, then filled with alternate layers of ice and salt. It was loud. I would put it on to churn and then go take a bath, shutting the bathroom door between myself and the horrible grinding of machinery.

I tried a bunch of ice cream recipes, with varying results. I scrambled custards at the last minute, because I got distracted singing along to Joss Stone (she was so rad in 2008!). Or, I just let them cook too long, because though I told myself I could “afford” an ice cream maker, I sure as hell wasn’t buying an instant-read thermometer. Even though all the recipes told me to. But that was just one of the parts I ignored.

Two years ago, I had a summer flingy type courtship with someone who was bound and determined to teach me to make ice cream, consistently and without rebellion. He was one of those church of Alton Brown types, who go around making finicky food preparation demands all in the name of science and chemistry and testing and blahblahblah. You can see how his methodicalness and my need to stray could potentially crash and burn just out of reach of the ice water bath. (I’m already freezing a thousand ice cubes for the actual ice cream churning, must I really cool the custard in an ice water bath beforehand? That’s just more ice and another bowl to wash.)

I must admit, though, that despite his Alton Browniness, Summer Fling did coax me and my kitchen into churning out some fine ice cream. Once I saw how the instant-read thermometer really DID reduce custard scrambling, and how actually paying attention to ice and salt ratios instead of just throwing things willy-nilly into the bucket helped freeze the base more evenly, I was willing to concede to a little methodicalness. I still held, though, that even a “premium” vanilla ice cream is boring, and I insisted that it was perfectly acceptable to add cookie dough, brownie chunks, AND chocolate shavings to my freshly churned batch, instead of just settling on one of those. We made phenomenal mint-chip, and even as I complained about how mint-chip shouldn’t be eaten outside of December holidays, I was shoveling half a pint down my shivering throat the whole time. We made sour cherry, which was disastrous, because as it turns out, even the Alton Brown Wannabe didn’t realize that if you mix in the cherries while the custard is still hot, the cream curdles from the fruit’s acidity and freezes into little grainy pebbles. More important than success and failure, though, is that we made compromises. And though you could say, “it’s just ice cream”, it’s not just ice cream. It’s life.

This year, my ice cream maker began showing signs of old age. Even though the reviews on Amazon overwhelmingly insisted that theirs had lasted for years, the motor in mine sounded more pained and geriatric with each new slurry of ice and salt and cream. I offhandedly, grumblingly, mentioned this to Pat and forgot about it. Until my birthday and the first day of summer coincided on the calendar and, like some frozen treat fairy godmother, he sent me a shiny new freezer-canister ice cream maker. No ice and salt. No giant bucket. No shrieking machinery while I hide in the bathtub. Also included: a spare canister, for when one quart of ice cream simply isn’t enough. Which has been the case, every time, during this above-average-temperature Seattle summer.

Now, you still might be saying, “It’s just ice cream.” But it’s not just ice cream. It’s love.

She squeezes in next to me at lunch
this woman, almost graduated, MFA nearly done
manuscript ready, pitch pitched,
book unfurling on its own winged pages
“Your thesis,” she says, “what is it? What are your ideas?”
And she hunts me like a bulldog
ramming its head against my hand, but instead of “pet me” it’s
“Thesis thesis thesis. What are you doing? What are you thinking? It’s coming, next semester, on the other side of solstice, in the cold wet of January
what’ll it be, chickadee?”
She’s eating and haranguing, badgering, slurping up my noncommittal “I don’t knows” but not swallowing
And I DON’T know except to say that I want to tell the stories that aren’t getting told
I want to take what’s outside of me and bring it in
give the solstice birds room to roost and talk and tell
the stories they never dared
the things I have never said
together, maybe we can shoulder our grief
and figure out how to reframe the things we’ve lost
or reconcile that they were never ours to begin with.
I want to stretch the edges of my curiosity
though I hope they go on forever.
I want to tell the stories
that set my teeth on edge
and pull my tears from drought
I always want there to be something that I don’t know.
“Thesis” beats in my brain like the heart of a hungry hawk
I’m listening
She laughs, satisfied.